PAIN WARRIOR: Mimi Hoppe – Girl Vs. CRPS
While it’s my brother who has RSD / CRPS, as with any disease, the whole family is affected. The lives of my two young nieces especially have changed. Their once active father can’t “play” with them in the same way he used too; Dad biking with them has been modified to my brother walking behind them while they zip back and forth. Chasing them becomes quickly grabbing their giggly selves as they run by. You could say that, all in all they have “adapted” to this new way of life but it’s hard to adapt to your father, out of the blue, on his knees battling a pain flare. It’s at those times I see those glimpses of fear or confusion in their eyes.
The other day on my search for news regarding RSD / CRPS, I found a video by Mimi Hoppe. Mimi is 10 years old and has RSD / CRPS. She has made an awareness video introducing her pain management team at Lucile Packard Children’s Hospital at Stanford. It’s a great video that highlights physiotherapy, desensitization techniques not to mention the bubbly and inspirational Pain Warrior, Mimi Hoppe.
When I played this video for my nieces they were spellbound. Here was, not only another person with RSD / CRPS but a young girl, like themselves. As the video played, they asked me, “What are they doing to Mimi?” I explained that the Hospital was trying different things to try to stop her pain or bring it to “more comfortable” level. For the first time it seemed I saw a glimmer of hope and understanding in their eyes. Other people had this disease, not only their Dad and there were lots of people working to stop the pain their Dad felt. I believe there is a comfort in “knowing”. If you have children, think about introducing them to Mimi Hoppe.